What is NF:
Neurofibromatosis 1 (NF1): also known as von Recklinghausen NF or Peripheral NF. Occurring in 1:3,000 births, it is characterized by multiple cafe-au-lait spots and neurofibromas on or under the skin. Enlargement and deformation of bones and curvature of the spine (scoliosis) may also occur. Occasionally, tumors may develop in the brain, on cranial nerves, or on the spinal cord. About 50% of people with NF1 also have learning disabilities. (www.ctf.org)
Ask questions! I can’t stress this enough. Ask your doctor or doctors. There isn’t a stupid question. If you’re not sure of something or you have a question about something you’ve read,ask a doctor.
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